44 Days Old: Daily Update

Good morning. Olivia had a peaceful night. She completed a 3.5-hour sprint this morning.

Today, the pulmonary specialist team will [re]consult on Olivia’s case for ventilation extubation. We have a full week of positive sprinting data for them to consider, so Mom and Dad are optimistic. She has a known hurdle with her capabilities to manage secretions and protect her airway. Doing these tasks requires swallowing, coughing, and using muscle groups we can’t readily assess (due to ventilation). Given her overall muscular picture, these areas are likely weakened. We’ve observed some affirmative signs strength in OT. We don’t expect a decision from Pulmonary today – but would be delighted with one. They’ll stop by today around 3:30 PM.

Medical updates:

  • Feeds. Her volume (20 MLs/HR) remains the same. She’s increasing to 2 teaspoons of pregestimil (from 1.5).
  • Respiratory. She’s going up to 4 hours today. This may change based on her pulmonary consult.
  • Labs. Results came in early, as they combined the blood draw slated for tomorrow. Direct bilirubin is down to 3.9. Other results were normal, including her blood gas.

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Post-Yogging Snooze

7 Comments

  1. Great report! Praying for good results from pulmonary and hoping her muscular condition has improved. Love you all and praying.

  2. Now here is what I believe: Olivia has met lots of obstacles, but she is the toughest non-quitter that I have ever met! I am optimistic that my granddaughter will succeed!

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