We had a great weekend with Olivia. Friday was full of new activities, and Saturday was a nice long day with Mom and Dad. We had lots of girl time, which Mom soaked up. Sunday started off on a good note as well. We visited for a couple of hours in the early morning, before stepping out to celebrate our goddaughter’s baptism. Hi Emma!
Sunday evening Olivia started having more respiratory events, which continued throughout the day today. Last time her events started acting up like this, we later realized she had an infection… so the team was concerned that she may be getting sick again.
We ordered an x-ray, loads of blood work, and a urine sample this morning, but all initial reads look normal. Since she’s continued to struggle a bit today, Dr. P is recommending we increase her ventilator support overnight to let her rest and ensure she has fully recruited both lungs.
Not a ton to share otherwise. We’re still waiting for her biopsy to be scheduled, and in the meantime are hoping she starts to feel better soon. Watching your little one fuss and cry and struggle all day is no fun!