One Month Old – Olivia Grace

Our sweet girl’s journey with congenital Spinal Muscular Atrophy (SMA)

Olivia’s Story
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May 24, 2016 7 Comments

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June 9, 2016

47 Days Old: Extubation Trial #2

May 21, 2016

Olivia Grace came into the world on Sunday, April 24, 2016. Truly a one-of-a-kind gal, Olivia's case was medically complex, and she remained in the NICU for the entirety of her short life, as her team worked to understand, treat, and diagnose her condition.

Eventually diagnosed with "non-5q" Spinal Muscular Atrophy (SMA), Olivia passed away on July 10, 2016.

Our sweet Olivia touched the lives of many, many people in her short life, and we find great comfort knowing how loved she was by all.

xo Luke and Whitney

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