Olivia Grace

Our sweet girl’s journey with congenital Spinal Muscular Atrophy (SMA)

  • Olivia’s Story
  • The Blog
  • Pictures
  • Videos
  • About SMA
Menu

Stories from Mom

Protected: One Month Old

May 24, 2016 7 Comments

This content is password protected. To view it please enter your password below:

monthly milestonespictures
Previous Post Next Post
July 11, 2016

Monday Morning

June 15, 2016

53 Days Old: Daily Update

May 27, 2016

34 Days Old: Daily Update

Olivia Grace came into the world on Sunday, April 24, 2016. Truly a one-of-a-kind gal, Olivia's case was medically complex, and she remained in the NICU for the entirety of her short life, as her team worked to understand, treat, and diagnose her condition.

Eventually diagnosed with "non-5q" Spinal Muscular Atrophy (SMA), Olivia passed away on July 10, 2016.

Our sweet Olivia touched the lives of many, many people in her short life, and we find great comfort knowing how loved she was by all.

xo Luke and Whitney

Recent Medical Updates

  • July 10, 2016

    78 Days Old: Gone to Heaven

  • July 6, 2016

    73 & 74 Days Old: Muscle Biopsy

  • July 4, 2016

    72 Days Old: A Baptism, A Long Walk, and the 4th of July

  • June 30, 2016

    68 Days Old: Daily Update

  • June 28, 2016

    66 Days Old: Daily Update

Stories from Mom

  • September 13, 2016

    A Complete Collection

  • July 20, 2016

    How To Vacation After Loss

  • July 19, 2016

    Leaving Town

Stories from Dad

  • July 11, 2016

    Olivia’s Final Medical Story

  • June 25, 2016

    Two Months: OT Report Card

  • June 24, 2016

    Olivia & Dad’s Favorite Song

  • Olivia’s Story
  • The Blog
  • Pictures
  • Videos
  • About SMA

Olivia Grace