This morning, the team removed Olivia’s ET tube, a process referred to as extubation.
The last time extubation was trialled, Olivia was only 5 days old and we knew so much less about her capabilities and challenges. This time, we are far more hopeful that she’ll have the strength and endurance necessary to remain unintubated, although only time will tell.
This morning’s procedure was fairly simple and only took a few minutes. Her tube was replaced with a RAM Cannula, which provides her both pressure support and rate via her nose. Since this goes into her nostrils (vs. directly into her trachea or lungs), the support is not as direct as she’s used to. Instead of all going into her lungs, now some escapes through her mouth, and some also makes its way into her stomach. She’s likely to be on higher O2 settings (30-40%) for awhile, as she gets used to this whole life without a tube thing, and her team may continue to play with her settings for pressure support. Ultimately, we’d hope to remove the RAM, however, for a few days we’re giving her all the support she needs. Dr. M has ordered that only he (or the night attending, Dr. R) can give the authority to re-intubate her. He wants to try everything possible to give her a shot at success.
- 7:00 AM – Our nurse, arrives and turns off her feeds.
- 8:00 AM – Mom and Dad arrive. Olivia is awake. Mom combs her hair.
- 8:30 AM – Respiratory team & the docs begin preparations.
- 8:35 AM – The tube is out! We can hear her trying to cry.
- 8:38 AM – Dr. M gives the OK, the procedure is over.
- 11:05 AM – NG tube back in.
- 12:00 PM – Blood gas drawn
- 12:10 PM – Support increase (rate and pressure).
- 12:15 PM – x-ray reveals collapsed right lung.
- 12:50 PM – Restarted feeds
- 2:15 PM – Blood gas drawn
The pictures above are from immediately after the tube was removed. She became quite agitated and struggled for 3+ hours after extubation, but we were told this is somewhat expected, and that we should be prepared to see that type of response for a few days – she’s had the tube in for 45 days, after all.
A blood gas was drawn at 12pm (3 hours after extubation), and unfortunately it was very high (82). The team was concerned about her lungs, and an x-ray revealed a partial collapse of her right lung. Pressure support and rate were both increased significantly to help her re-recruit that lung.
Following the setting adjustments and some repositioning, Olivia settled down and slept much more comfortably for the afternoon. While we haven’t seen a follow up x-ray, a second blood gas at 2:15 pm was much better (64) and just at the upper bound of her normal range.
From here on out, we wait and see. Mom and Dad are excited but nervous. The day was rather stressful (much moreso than anticipated) and it’s likely to stay that way for awhile as we see how she responds to this major transition.
In the meantime, we look forward to when she’s awake and mad, as we can hear the faintest hints of her crying, which, for now, we love.
Oh goodness sweet Olivia! Hang in there sweet pea! We all love you so much! You are such a strong little one and we all are amazed at your progress. Love, Nana💞💘💤💤
So love seeing her whole face!💘
What a journey today! I can only imagine your emotions. Phew! Love from Grampa.
Wow..lots happening! Some nervous times!Hope time will smooth things out more for you, Sweet Olivia and for Mom and Dad. Thoughts and prayers 🙏🏼 for you all❤️❤️❤️ Love, Aunt Susan😘
Keep up the great work, Olivia…and Mom & Dad <3
Sweet Olivia. Tough but exciting day for you. Hope mom and dad are ok. Lots of prayers and thoughts with you all. We are here for you and love you all
Oh my what a day for you. My heart is in my throat. Please continue to keep us aware of everything. What a fighter my brave granddaughter is!
You too Whitney & Luke. We are here for you
Very exciting and tiring for all, I’m sure. It is wonderful to see Olivia’s face! Thinking of you all tonight and hoping for the best.
Oh Whitney and Luke!! Today must have been so stressful. But seeing her whole face! Wow! She looks so much like her dad!!!!
Hi Wink and Luke, I’m a long time follower of your dear, sweet Olivia. She is always in my thoughts and prayers. Hers and yours -success story is amazing. What a great day of news. 👏🙏🏻👌love you all. Eileen. I’ll figure out the id picture eventually. I promise.